This is a story I wrote 5 years ago. It was published in a magazine called, The Case Manager. A friend, editor and hero, Catherine Mullahy helped me immensely and lightly edited for the better I believe.We are still providing choice in Vermont for nursing home care and I hope we do it as well as one can. I got permission to publish this once in my blog, my anthology of writing I hope a legacy to explain who I am, what I did and what I believe. This is my own version. The published version is available at the link below.
Case Management in Robert Frost Country
Official copyrighted version published in The Case Manager Nov/Dec 2006
Link:
http://www.sciencedirect.com/science/journal/10619259
By Mary E. Gerdt 2006
As I began to write what I thought would be a poetic article, I paused to explore
Robert Frost, the man. He is famous in this area for his poetry and his lifestyle of writing
and taking walks in nature. He gave me a goal to work toward.
I envisioned him sitting in his Ripton cabin in need of long term care and out of
money (he was a poet after all). My phone rings. It is a call from a case manager or his
doctor or home health nurse or even from Robert himself. Then I make a few phone calls
and am unable to leave a message. He is out for one of his famous nature hikes. He can't
go as far as he used to and now rides an all terrain scooter of sorts. Finally I get the man
on the phone. He is not sure what I am talking about. Choices for Care? It is a Vermont
Medicaid program for long term care. I lost him. The famous scholar needs me to slow
down and explain. It is a Medicare project. A waiver to the state to provide long term
care in your choice of setting. He is stuck on the word waiver. Nothing rhymes with that
one. I change the subject. So you write poetry? "A little" he replies with a little giggle.
"Silly nurse" he is thinking. Finally we come to agree on a date and time to meet. I will
be doing a clinical assessment. OK he says. He has learned by now I will say things he
has never heard and if he agrees, I will visit and give him more words he does not
understand. Like most people though, he is polite and a little lonely. A visitor would be
nice on a snowy afternoon on the mountain.
Looking into his history, I review what I have of his medical records, home health
OASIS assessment, nursing notes, doctor notes, application. There is very little here.
Diagnoses, medications, generic repetitive statements/care plans.
Nothing about "the man"
I go on the internet. Here is one guy I can search for on the web.
He wasn't born in New England after all. California? His dad took him there and
then died of Tuberculosis. I envisioned young Robbie losing his Dad, hero, his male role
model. And to boot his mother had to support the family. They returned to New England.
I read through all the losses in his life. His children. A three year old, a newborn, one died in
childbirth, a suicide. He lost his precious wife. Only later in life, he holed up here in this
cabin where he could live with nature, write poetry and cry silent and alone when the
cold winds howled.
I had always thought of him as a Vermont native. I myself am not and have been
pestered at times by the multigenerationals. "Flatlander" I have been called. My husband
is a fourth generation Vermonter. He says when we married I assumed his status as a
"real Vermonter". I do not push this to other natives. They would not understand.
So when I read where Robert has been, England, Massachusetts, New Hampshire, I
cannot classify him as a native. But when we assess eligibility residency is simple. You
live here and you have been in the U.S. 5 years, you are a Vermonter.
So I have new feelings about this man when I know where he has been, his losses,
his successes.
Financial eligibility is a quick review. Famous poet. Any assets? Income? No
surprise if I see small numbers. Many arrive at late life with pennies on the dollar. His
taxes must be a bear up here. Flatlanders driving the property values up. What will we do
when we are 80 something? He will still have to do the long forms and submit bank
statements, accounting details for Long Term Care Medicaid eligibility.
I prepare the papers and fill in the forms where I can. I look up my map where the
cabin is. Reminds me of The Legend of Sleepy Hollow. The maple leaves have fallen and
now the road is a swirl of red and yellow and brown. I go up, up, up the hill. What a
place. Views far to the west, The Adirondacks in the distance. The road narrows and
winds. Little bridges creak as I cross them. Funny how this road goes. First this way than
that. Following a deer path perhaps. I keep stopping to check the map.
I think about the program, Choices for Care, a new job for me and 11 other nurses
in Vermont. One for each region. Two for Burlington, the biggest city. We are paving
new ground. We are all enthusiastic about helping Vermonters make the choice between
long term care settings.
The previous Home based Medicaid Waiver was granted by "slots". The funding
depended on legislative action (Robert might call that an oxymoron). Now the Agency of
Human Services of Vermont has gained the status to offer choices to all eligible
Vermonters.
In other words, when a client meets clinical and financial eligibility for Choices
for Care (nursing home eligible/long term Medicaid eligible), they may choose to receive that care in a
traditional nursing home, home based or residential care settings. These clients are often referred to
as "Skilled" or "Intermediate" level of care. They often choose home based when they can.
Robert wants to stay at home.
I arrive at the cabin. My curious side looks at the little details. Indicators of
personality traits. Knick knacks, photos, plaques, awards, pets, glimpses of the life before
old age.
Smells, foods, views out windows. Wishing I could tap into the memories. When
their children were born and died and married and had children. When all the world
bought his poetry and we recited the poem in English class. "Walking through the Woods
on a Snowy Evening…." I want to ask him about his work, his life, his poetry. I found
many of the verses impossible to understand. Others so easy. But would he stoop to
talking to me, a nurse, about poetry. Besides, I only have two hours to get this
assessment done and then get back to the office.
He opens the door. He is shorter than I thought. Famous people usually are.
He is a little shy or maybe wondering why this persistent nurse wants to visit him on a
snowy afternoon.
I notice the lack of female presence. This is a male cabin. His wife has been gone
a long time. "Like yesterday" is how he remembers her. I get a little teary. We both laugh.
I run through the usual routine of questions. Are you able to perform the various
Activities of Daily Living? Any medical issues? Memory/cognition problems? Short term
problems, long term problems, behavior issues, informal supports.
I measure his level of care with the tools we were given and by my own
experiences in acute care, post acute care, long term care, insurance, home care. I think
how my own crooked path has brought me to the man who wrote about the path less
traveled. And how my career in case management has brought a thread through it all.
How when I was laid off in 1996 (nurses were never laid off), my personal devastation
brought me to the most rewarding and exciting less traveled road of case management.
I review the worksheet. He meets criteria for the program.
I fill out certification papers to get him started. We talk about case management
agency choice. Then personal care service choice. Then we discuss personal emergency
services. Companion time. Adult day services. We discuss how if it does not work out for him at home he
could go to a nursing home bed or residential care home if bed available.
We discuss the financial application and how that will be the next step to finish.
His case manager can help him with this.
By the end of our two hours he looked appropriately dazed. The forms, the
signatures, the criteria, protocols. He says he is glad he is the poet and I am the nurse. I
tell him I like to think of myself as both nurse and a writer and poet. Except that my
verses are not so perfect in meter and rhyme. My prose not desired by big publishers and
scholars. I took one college course in literature. I am a slow reader. But I enjoy
expression of ideas, sharing of stories. Hearing a tale from a client is to me the ultimate
sharing of two people in our small world. A poem without framework. A living
impromptu moment of energy remembered only in our minds and so transient.
Robert's on the mountain.
Robert's on the mountain.
He's not coming down
not coming down
not coming down
Robert's on the mountain
Today
He's goin for a walk
Down the less traveled path
Not coming down
Not coming down
Robert's on the mountain
To stay
Robert's goin for a walk
Looking at a bird
Writing his words
Living up there today
Today
Robert's on the mountain
Now going to stay
Writing his poems
Welcoming the new day
Live in the present.
Stay where you are.
Robert's on the mountain
His choice is there.
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Reprint orders: E-mail authorsupport@elsevier.com or phone (toll-free) 888-834-7287; reprint no. YMCM 439
1 Mary E. Gerdt, RN, CCM, is the Choices for Care long-term care clinical coordinator in the Department of Disabilities, Aging and Independent Living for the State of Vermont, Middlebury region.
PII: S1061-9259(06)00374-2
doi:10.1016/j.casemgr.2006.08.010
© 2006 Mosby, Inc. All rights reserved.
Hi Mary,
ReplyDeleteGreat post, good reading thanks for sharing.i
Love,
Herrad
Thanks Herrad for stopping by! Love, Mary
ReplyDeleteOh I loved this! Reminds me of the time my caseworker came to visit me but never got inside her head. Now I have...
ReplyDeleteHmmmm...the poet? WOW!
Some of us just can't quit our day job! :)
ReplyDelete