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Showing posts with label Multiple Scerosis. Show all posts
Showing posts with label Multiple Scerosis. Show all posts

Tuesday, July 17, 2018

Routine Status meg I’m Late

I’m Late
I’m Late
For a Very Important
Posting,
Russian influences
On the Brain 🧠
My Thumb Pain
Gone
Then
Back Again,
Lonely Train,
That Dreaded Brain Pain,
Routine Interrupted.
Doesn’t Seem Like Much,
Work Through The Pain,
Spasms, Fatigue and Such.
Then Russian Influence
Like the Static in my Nerves,
Can Cause Crying 😒 panic 😱 or Shame πŸ‘ŽπŸ»
As Invisible Waves split my nerve fibers,
Making Limbs and Brain so Lame πŸ˜’
So pardon
I’m Late,
Watching Snafu’s besides Mine,
Taking my mind off my routine,
Whew,
Posting just in Time πŸ˜ŽπŸŒ»πŸπŸ–‹☎️

Monday, May 11, 2015

The Altered Neural Pathway #MS #MultipleSclerosis

The Altered Neural Pathway.  By Mary E. Gerdt

And so I put pen to paper
After thinking about me
And MS and other types of
Neural Degeneration.
Altered Pathway,
Better than no pathway.

When I cared for stroke victims,
I would tell them,
Get a lot of rest,
Your laying down new track.

Thursday, February 5, 2015

Conquerors Wanted

Conquerors Wanted




If you have Multiple Sclerosis,
Please consider joining the movement
To Conquer Multiple Sclerosis.

Who knows the MonSter,
Better than You?

The gathering of this information will help researchers.
Please feel free to share this site.

Meg

Friday, July 18, 2014

Breakthrough in MS research at FAHC - WCAX.COM Local Vermont News, Weather and Sports-

Breakthrough in MS research at FAHC - WCAX.COM Local Vermont News, Weather and Sports-


notes: Dr. Applebee is my trusted doctor who I mention, and revere in my ms story "Wheelchair Repellant". She was a fellow at the time, hand picked by the master, Dr. Hillel Panitch. He is known in part for his pioneering research on interferons.
He believed people with ms could be helped, and if you don't know neurologists like I do (having worked many years as a nurse and now patient), you do not know how rare that is. I wrote a story about him, "For my doctor".
When i moved to vt in 1981, I went to work on the neurology-male urology hospital unit.
Interesting mix. I was 23.
I did not appreciate at the time how many great neurologists came to UVM-at that time called medical center hospital of vermont. Keeping fingers crossed for our docs and research participants...
meg

Thursday, June 12, 2014

Keeping up with misinformation...#MultipleSclerosis and Nutrition

Struggling to keep up with misinformation,
realizing that is part of the communications problems in the world.
Been hyper focusing on fracking,
I see the doublespeak, lawyer shenaniganzas, public officials opening some doors, closing others,
biased editors accepting ad money, shills for Canadian land robbers, the Lake-6th Great lake gets no voice. A sick movie, futility of the Good Fight.
A lot like MS, Multiple Sclerosis.
And no matter the outcome,
Fight we Must!


So I listen to the radio, and over and over the nutritional supplements are pushed.
Forget the pipeline a minute.
Back to the home battle front.
I couldn't stand the ads....over and over...I got furious but I am supposed to keep calm and not get stressed out.
I wrote the Loser nutrition supplement company balance of nature
No response
 (suspiciously similar to the un-natural gaz)

*****my notes in italics...
They aired claims by Lauren...who sounds a little demented
she said she took nutritional supplements for ms and became
"stable'
meg: I have never been called stable or unstable...I have RRMS and take immunomodulation drugs-shots, not vitamins. This is according to present standards of neurological clinical practice.

She mentions
growing spots or did she say
glowing
active?

meg: Spots do not necessarily correlate to clinical presentation or disease progression. Glowing spots with Gad dye show a breach in the blood-brain barrier. Current treatment would suggest pulse high dose steroids, for an exacerbation not vitamin pills. Exacerbations are assessed using comprehensive neuro exam, testing, evaluation of medications. Never been asked if I am taking my vitamins. 

meeting the doctor a year later, Lauren read the mri
meg: Reading the Mri is something I leave for my neurologist
I have so many spots and have to ignore them. Your brain has at least 90% more capacity than you use. Lauren is not helping anyone with her 10%.

mri nothing growing dark spots shrinking healing in remission my reality

meg: Lauren, I feel sorry for you. If you see this, ditch the vegetable pills, the snake oil, the crystals.
Go to a board certified MS specialist.


My Article about treatments for MS....Wheelchair Repellant. I don't take vitamins

When I did a search for Clinical trials for "balance of nature" claims that dietary supplements help ms....I found this article...meg
Autoimmune Diseases
Volume 2010 (2010), Article ID 249842, 12 pages
http://dx.doi.org/10.4061/2010/249842
Review Article

May Diet and Dietary Supplements Improve the Wellness of Multiple Sclerosis Patients? A Molecular Approach

1Dipartimento di Biologia D.B.A.F., UniversitΓ  degli Studi della Basilicata, 85100 Potenza, Italy
2Istituto Nazionale di Biostrutture e Biosistemi (INBB), 00100 Roma, Italy
3Dipartimento di Biochimica e Biologia Molecolare “Ernesto Quagliariello”, 70126, Bari, Italy
Received 4 November 2010; Accepted 27 December 2010
Academic Editor: Corrado Betterle
Copyright © 2010 Paolo Riccio et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

How to Cite this Article

Paolo Riccio, Rocco Rossano, and Grazia Maria Liuzzi, “May Diet and Dietary Supplements Improve the Wellness of Multiple Sclerosis Patients? A Molecular Approach,” Autoimmune Diseases, vol. 2010, Article ID 249842, 12 pages, 2010. doi:10.4061/2010/249842