Fred came with me
When I went to my routine MS neurologist appointment.
I can’t walk.
It seems a natural progression.
PT makes sense again.
I’m 66 now, Diagnosed age 49 after 12 years of MS symptoms.
She wants Me to have an MRI.
Plain (without gadolinium) is fine (I still worry about exciting those gadolinium deposits and I don’t tell her)
I squeaked out “Gadolinium” a couple of times.
She didn’t flinch.
She didn’t nod yes or shake her head No.
In truth, she didn’t react at all.
Fred saw it.
Tweet from Down Under 🦘
At the heart of heart disease: serious gender inequalities at every stage of care https://blogs.unimelb.edu.au/sciencecommunication/2022/09/22/at-the-heart-of-heart-disease-serious-gender-inequalities-at-every-stage-of-care/
My comment:
Dr. Giovanni introduced Me to Gaslighting. It is found everywhere in Healthcare. https://traveloguefortheuniverse.blogspot.com/2022/08/gaslighting.html Patient complains of symptoms/pain and dismissed by Dr. or not heard by Dr. I was a Nurse many years and now a patient. Patients also have a Responsibility to Report Symptoms. Women often in a complex role-caregiver, Mom, Job. Women may be in denial, may not feel a thing. I explained to My Husband. My Stepson died of a cardiac arrest at home. Young People don’t have collateral circulation. They drop dead. You Doctors Don’t see them except pathologists.
From Doctor Gavin Giovanni 👍
Podcast…
You have the Best Thought Provoking articles & podcasts Re: Multiple Sclerosis 👍😎
My diagnosis took 12 years until 3rd episode & gadolinium MRI Glowing lesions. The lesions were there the whole time. Why bother with gadolinium!? Crosses BBB & gets trapped/retained.
1st left sided numbness-to left of the middle. 2nd Optic Neuritis-Opthomologist Rx’ d with course of High dose steroids. Still scarred ON. 3rd Right Sided numbness. Found glowing slice into my C5 nerves. TY
Oh yes, to be truthful a a Patient is hard to do. Stumble/fall/trip/weakness/pain.
Nobody wants MS.
Denial comes first.
Doc walks in,
“How are You Doing?”
“I’m Fine.” Even if I’m not 🤦♀️
I didn’t notice my vision loss until Optho saw it & explained.
Gaslighting
What led me to explore this phenomenon
Dr. G posted this:
https://gavingiovannoni.substack.com/p/gaslighting-an-institutional-problem
My comment:
Lots of articles about Gaslighting…
Great link & Explanation by Aspen Sage Baxter 👍🏼
Great article by https://www.insider.com/author/anna-medaris
https://www.insider.com/doctor-who-has-been-gaslighted-shares-advice-for-patients-2022-8
