Shadows shift, old chains break free,
Wheels turn on, MS won’t break me.
Dawn arises, trust the flow,
Gadolinium fades, new strength grows.
Verse 2:
Winding paths through fields of green,
Warrior runs with sword so keen.
Dragon falls, fire turns to light,
New chapter calls—claim your fight.
Verse 3:
Myelin scarred, nerves interrupted,
Warrior blood, through generations trusted.
Dragon within, fierce fire unyielding,
Slay the storm, power revealing.
Fred came with me
When I went to my routine MS neurologist appointment.
I can’t walk.
It seems a natural progression.
PT makes sense again.
I’m 66 now, Diagnosed age 49 after 12 years of MS symptoms.
She wants Me to have an MRI.
Plain (without gadolinium) is fine (I still worry about exciting those gadolinium deposits and I don’t tell her)
I squeaked out “Gadolinium” a couple of times.
She didn’t flinch.
She didn’t nod yes or shake her head No.
In truth, she didn’t react at all.
Fred saw it.
From Doctor Gavin Giovanni 👍
Podcast…
You have the Best Thought Provoking articles & podcasts Re: Multiple Sclerosis 👍😎
My diagnosis took 12 years until 3rd episode & gadolinium MRI Glowing lesions. The lesions were there the whole time. Why bother with gadolinium!? Crosses BBB & gets trapped/retained.
1st left sided numbness-to left of the middle. 2nd Optic Neuritis-Opthomologist Rx’ d with course of High dose steroids. Still scarred ON. 3rd Right Sided numbness. Found glowing slice into my C5 nerves. TY
Oh yes, to be truthful a a Patient is hard to do. Stumble/fall/trip/weakness/pain.
Nobody wants MS.
Denial comes first.
Doc walks in,
“How are You Doing?”
“I’m Fine.” Even if I’m not 🤦♀️
I didn’t notice my vision loss until Optho saw it & explained.
Gaslighting
What led me to explore this phenomenon
Dr. G posted this:
https://gavingiovannoni.substack.com/p/gaslighting-an-institutional-problem
My comment:
Lots of articles about Gaslighting…
Great link & Explanation by Aspen Sage Baxter 👍🏼
Great article by https://www.insider.com/author/anna-medaris
https://www.insider.com/doctor-who-has-been-gaslighted-shares-advice-for-patients-2022-8
From Friend Rachel…We need more
Inquiry, Sharing, Holistic Health 👩⚕️
My piece on MS & menopause:
— Rachel Horne (@RachelHorne19) June 12, 2022
MS = Menopause Silence
Because for too long, the impact of menopause on women with MS has been ignored & understudied.
Isn’t it time to change ‘the change’?
A huge thx you to the 25 women with MS who shared their experiences. https://t.co/0wtF37D9I6 pic.twitter.com/J54QTYQAuU
my comments:
Excellent Topic. I’m ready to add more to the List of MS Symptoms that Overlap. When I worked on Neurology floor in the 1980’s, our older female MS patients were often Wheelchair Dependent, in continent, intermittently catheterized or had a catheter. Menopause never came up in the care plan. DMT’s not invented yet. A Total Health Assessment evaluating Body/Mind Health, Nutrition, Supplements, Physical ability, routine, strength. Vitamin D also important-sunshine and daily pills. I always mention Gadolinium Contrast sometimes used in MRI. Side effects I blame on Gad is denied by my many Specialist Doctors. MG
Dr. G started me thinking. I Hope You’re not lonely this Christmas.
I’m here and Thinking of You 😎🎄🎁🙏🏼🌎🌏🚀🐈⬛👑
Loneliness can come in waves, loss of a loved one can break you down. Likewise friends are not always well meaning. It’s hard to reveal your diagnosis whether at work, home or in social circles. It’s unpredictable the response from Oh, I’m So sorry 😣 to You don’t look so bad. If You hear Can I Help You? Are they sincere? Could You accept help? You’re so independent. This year joined The Ordinary Office, Virtual Church online. They began
A theme Alone Together. That describes My Multiple Sclerosis Friendship Circle. Virtual communication is still communicating, knowing someone hears or listens or asks Me or You something and You share and it’s dispersed. End of Year, time of reflection, Thanks for getting my brain engaged, virtually. 😎
Are you feeling lonely this Christmas?
I’ll be online with @Ord_Off and Twitterverse 😎🎄🎁❤️🌎🌏🚀👩💻
Follow @GavinGiovannoni for great #multiplesclerosis topics & invites to participate. 😎 https://t.co/cNtJLtlvBB
— Mary Gerdt Parler:Alvarita1 (@marygerdt) December 23, 2021
Bob Dylan’s latest video is Simply Stellar ❤️😎🎁🎄🙏🏼
Bob Dylan - Little Drummer Boy (Official Video) https://t.co/sjEtSTmQnL via @YouTube @bobdylan ❤️❤️❤️ 🥁🎁🎄😎🙏🏼
— Mary Gerdt Parler:Alvarita1 (@marygerdt) December 24, 2021
I have Several Apps for Health, Body and Mind.
I’m imagining they would
Talk to One Another,
Then Tell Me What’s Going On.
Good Day
Bad Day
New Problems
New Successes
Exercise Brain and Body
Keep in Motion.
Talk Together.
I call it My Apollo.
https://traveloguefortheuniverse.blogspot.com/search?q=Apollo+
I Love it!.
********************************************
Last and Not Least
My Oura Ring
The Oura Ring is a Monitor
Screens like…
40 Years ago
Sometimes feels like Yesterday.
Today I am posting both a Modern Neurologists look at
Medical Cannabis and my thoughts afterwards.
From Dr. Beaber’ s YouTube Channel
My Comments:
Visit the Barts Blog and Take the Quiz 📝
https://multiple-sclerosis-research.org/2021/05/the-c-word/
About finding a Cure
https://multiple-sclerosis-research.org/2021/05/curing-ms-2/
Help us understand more about medication adherence in #MS https://t.co/tOl7VBx5B0 #MultipleSclerosis Take the Questionnaire, Help Others and Help Yourself Stay on #ms medication schedule 🙏🏼😎
— Mary Gerdt Parler:Alvarita1 (@marygerdt) May 14, 2021
Meela is stable at a reduced state of health.
She is eating gravy cat food products with tiny meat morsels.
She is sleeping for long periods and then gets up and saunters around and jumps on Fred’s lap or a chair. Always wants to go out on the porch. Me too. Colder this week.
Now for my MS Rant...
I follow several MS Academic Blogs. This one a Favorite. Still, Have to get my 2 cents in before my daily shot. My Response follows the link:
My response:
Somedays I feel so old school, shooting up Copaxone for 7 years then switched to Glatopa. It’s an easy routine for Me, old Nurse. Needles old hat. No 25 mile clinic drive to the infusion clinic for infusions I could give myself at home. Oh, those hand IV’s are So nasty, especially when our Hands are sometimes our greatest asset. Why not infusaports? I started Copaxone in 2005 in the CombiRx study. I was found to be very stable and turned out was only on Copaxone. I thought it acted like a decoy for the little nerve chomping MonSters? I equate it to Bee Stings I saw Charles Mraz be called to administer in the 1980’s in Burlington Vermont. I feel like Copaxone is like a bee sting, tiny proteins robbing the MonSters of Something they need to Thrive. Would I be worse without it? I have no doubt. I was having exacerbations at several year intervals. Not treated until third one. No exacerbations since 2005 (knock on wood). As long as you mention a drug and say “We believe “ it acts a certain way, you aren’t being honest with yourselves. Copaxone needs to be respected as a good drug especially for an older Grandma like myself. Convenient, private, no IV’s, simple, effective.
This is a deep one....
How does MFR help with any misinterpreted frequency causing illness, pain, fear, and solidification within the body?
Think of the fascial system not only as tethers of light streaming and suspending our tissues... but the fluid that seeps in, throughout, and around every sub-atomic character of cellular programming to make up what we are as a species, energy orb, and the solidified shape that we choose to make.
The ONLY reason we have shape.... the struggle against the force of gravity, dark matter, time, and the constructs of the universe in it's density pushing down on this force we call a person. Now lets get into the smallest and expand through the largest....
Rebounding... using the body's fluid motion to release the substructure adhesions below the consciousness.
Structural MFR... Utilizing the opposing forces of nature (to include one's self) to facilitate the subconscious mind in determining the physical boundaries in comparison to the energetic boundaries of the construct pressing down into our form.
MFR Unwinding.... Facilitating the movement of energy expansion beginning with the subconscious to explore the actual depths of time and space while accepting the orientation of "True Space".
Application.... When you applied the techniques appropriately and with true purpose a facilitation of separation of ALL molecular structures take place. First the skin feels the separation of the fluid within the body. The consciousness of fluid feels the separation of ground matrix in turn allows the expansion of space time within the body. Once a "letting go" affect takes place allowing the mind to sink further into source a further understanding of awarness takes place within the space of each dermis, fascicle of muscle fiber, sub-structured space of the cellular membrane, until ultimately the separation is felt within the helix of life itself.
At this point of singularity and with what can only be described by myself as the "Pure", true restructuring of the mind, body, and spirit takes place. Each sub-atomic particle detaches and the body, mind, essences, and self is re-organized in the layers of weight provided within the elements themselves. Not Air, Fire, Water... etc... not those elements. Rather, you can feel the re-organization of each element at it's source. From the heaviest particle of Oganessan (particle weight 118), Platinum (particle weight 78), all the way to the separation of the lightest touch of Hydrogen (particle weight 1). Now reverse this.... and feel every particle weighing down with a force of oblivion lasting for....well--There is no "time".
How does this apply to healing? The simplest answer.... when you can spread everything out and separate yourself and client down to this sub-atomic level you can see, touch, and facilitate anything... even if it seems to not even exist due to our own confusion while trying to understand who WE are as individual yet threaded entities in solidified physical form.
Use this gift that John and the staff have bestowed upon us with grace, compassion, and conviction.
Love~
Corey J.G. Cosgrove, LPTA/NBCLMMT
Lifelong student, practitioner, patient & clinic owner.
MFR 1(x2), 2, FP, CT, FC, UW(x2), RB, (x2), AUW, QL, EQ(1,2,&skills) & many more to come.
Though I am Here and You are There, If You Read this, have We Connected?
We’re Connecting online,
The ones who wake up in the night
With a Dragon biting our ankles.
If You don’t know the MonSter Personally (as in Possessed by)
Then It’s good for Neurologists to evaluate the Psychological Status of their patients in general.
MS is Itself a Failure. Losing aspects of your young life.
People Look at You Differently.
Social media removes barriers to my virtual friendships and Church.
It’s a new world. Embrace every moment.
Once in awhile I see a title and have to stop what I’m doing and comment.
It wasn’t a surprise, remyelination failure by humans.
I always feel the same reading any research on Multiple Sclerosis. Me, Once a Neuro Nurse, eager to help my patients get through high dose steroids after an exacerbation. MS 1980-ish.
No DMT’s. None, Not a one.
Here come Mrs. Jones again....she can’t walk now.
Admit 5 days then to nursing home for rehab, she can’t handle much therapy.
Today, I got my old school Copaxone shot out to warm up. Often I think of Dr. Panitch who I grew to love for his love of beating the MonSter. He invited me to the CombiRx study when diagnosed in 2007. I was randomized to Copaxone only arm but had flu like symptoms with the weekly placebo Avonex shots. The mind Is powerful. I do think Copaxone offers the Proteins needed to bathe my nerves in soothing broth. The give and take, yin/yang, Flowing. Nothing is static.
I think remyelination is Healing the Sheath.
Healing over scarred patches like a scab on a wound. Protective. Keeps rawness from spreading while the organism gets better, stronger.
Forget all your fancy mouse 🐁 drugs.
Think Vitamin needs, food for healing nerves.
How to remove toxins?
Prevention is key.
One element is to look at toxins the patient is exposed to.
Particularly Gadolinium. I believe it may do more harm than good.
Do little pieces of Gad do damage to the scarred places that light up on MRI?
Lastly, I recently started PT for my flat feet.
I am truly amazed at what foot exercises are doing for my balance, walking, knee pain.
Maybe this time I’ll keep doing her exercises after I’m done.
Thanks for listening 😎
Dr. Giovanni Breaks it all down. TY 👍🏼
On being EBV-negative and having MS https://t.co/Qp36ejeFp1 Great details on Diagnosis and Testing and more 😎👍🏼 @GavinGiovannoni #MultipleSclerosis
— Mary Gerdt Parler:Alvarita1 (@marygerdt) February 14, 2021
A favorite blogger posted:
My comment: How do I say this without risking potential skepticism? I’ve met with for years. Aside from finding the perfect Neuroprotectant Nerve Healing Anti Inflammatory Cocktail (bound to cost mightily), can you ever find a better way to evaluate pwMS level of Nerve Inflammation and Destruction than MRI with Gadolinium Contrast that is known to accumulate in our brains? I’m talking about Daily Wearable Monitor combined with daily self assessment, diary, testing. Activity level, sleep, pain. Hopeful for a miracle including Doctors who are Dreamers of the impossible. 😎
