Memorial Day USA 🇺🇸

 Today is Dedicated to the Veterans & Soldiers who keep us Safe 🙏🏼

Prayers for them ❤️

Now for our baby selfie 🤳 

Sunday Prayers 🙏🏼

 

#Caturday

 

Her interim name is Baby Boo Boo or Boo Boo Baby.
It will probably be her permanent name 😻 pic.twitter.com/87MoqDn30Y

— Mary Gerdt Parler:Alvarita1 (@marygerdt) May 27, 2021

Friday Night Musik

 

This week, a special little YouTube link.

This week we observed Levon Helm’s 🥁 Birthday 🥳 

And watched this YouTube 😎

Tgiff! 🚜 

#TBT

 

The Excavation

 

Betsy Gerdt 😍

 

A few of Mom’s paintings

Me

 

Mark Twain 

Musik Lovers

 

Nature Inside Outside

 

#Caturday

 

Friday Night Musik

 This week a special YouTube link… Tgiff!

Is Asking For a Cure, Asking Too Much? #MultipleSclerosis

 Visit the Barts Blog and Take the Quiz 📝 

https://multiple-sclerosis-research.org/2021/05/the-c-word/

About finding a Cure

https://multiple-sclerosis-research.org/2021/05/curing-ms-2/

Twittersphere Wisdom

 

#Optimism, #positivity, and #hope are that something we can do and give; but sometimes, even when we can't be optimistic or positive, it still might be possible to start to hope. pic.twitter.com/kVmLiUqHzX

— Wes Royer (@openupandsay) May 17, 2021

Getting to know her 😻

 

A New Chapter

 

New Family Member

 

Take the Questionnaire #MultipleSclerosis #Adherence

 

Help us understand more about medication adherence in #MS https://t.co/tOl7VBx5B0 #MultipleSclerosis Take the Questionnaire, Help Others and Help Yourself Stay on #ms medication schedule 🙏🏼😎

— Mary Gerdt Parler:Alvarita1 (@marygerdt) May 14, 2021

Friday Night Musik Link

 

Travelogue for the Universe: Saturday Night Journal #TBT Throwback Thursday

The day Levon Helm left the material plane….

Travelogue for the Universe: Saturday NightJournal: We went about the day as normal, Saturday chores & checking online for tributes, photos from Woodstock. It is Saturday, traditionally ...

Fragile view

 

Tuesday Music Lnk

 

Some of my favorite artists ❤️

YouTube link.

Happy Tuesday 😎

May Views

 

Peppers, Zinnias, Marigolds 

Yard Views 

Fragile Human

 Fragile Human 

Both Mother and Child 

She is born and Grows

To be Mother and Child.

Happy Mother’s Day ❤️ 😎 🙎‍♀️🙎🏽‍♀️🙎🏻‍♀️🙎🏿‍♀️🙎🏼‍♀️

Random imagery

 

Friday Night Musik

 Delightful 😎

Amy Helm ❤️

 

Another great music video by Amy Helm ❤️

Freedom of Speech, Yeah, that means everyone.

 

No mention of FB having protection as a publisher rather than an editor.@jack has the same luxury-getting a pass on banning President Trump I.e., #realDonaldTrump father of @DonaldJTrumpJr Not Mr. Trump @WSJ ! Nice to see you Lou https://t.co/8v62XQEmrn pic.twitter.com/WMqU6wXiF4

— Mary Gerdt Parler:Alvarita1 (@marygerdt) May 4, 2021

MS PTSD and Neurologist’s Angst

 My favorite Doctor blog posted this one….

https://multiple-sclerosis-research.org/2021/05/flashback/?unapproved=110217&moderation-hash=d1bfb7d0e72db68b1c4e6abed81ce2b1#comment-110217

My comments:

Try as you might, the Trauma You experienced and the Trauma we pwMS experience are parallels.

You have a New “condition “

You Lost Something (not always sure of What You lost)

You don’t know what’s next (and can’t get worse case scenario out of your scarred brain)

You don’t know how you’ll love,earn,be,feel Normal again

You don’t know if your Doctor is good enough, smart enough, nice enough, no pressure Doc.

Dr. G. Try not to try too hard.

PTSD Is a part of this MiSerable disease.

Psych referral or Preferably Clinic based Neuro Psych Doctor.

My Neuro Doctor Fellow was also a friend. She told me. 

Then I went home.

Grief, anger, You have to go through The Stages! No matter what!

Then I went back for the plan.

She didn’t jump right into the glossy Pharma bling.

She asked me if I’d had a good cry yet.

Then I cried.

And that was my beginning. As hard as it is, like your trauma, you simply have to accept it and move away from that day. You Must go through the stages of grief when you lose something so precious like your health and function. When the Future is murky, uncertain. Flashbacks to people you’ve known who were so sad looking.

I worked with a lot of Neurologists. I’m grateful Angie told me. Most, in my experience, lack the psych skills that would really help. They get too cerebral, or detached, or focusing on their gig. Angie had psych skills and she felt horrible seeing a friend lose something Precious, her envisioned future.

I got over it. When I recount my experiences, it’s a memory, not necessarily a Ruminating.

I’ve seen psych a few times over the years. They really help with adjustment to a new life, depression, anxiety. Neurologists need to hand off that task, preferably with a team, Psych, Social Worker (financial, medical coverage/needs,emotional support, family assessment, employment issues,periodic check ins),PT/OT/SLP eval and preventative, cognitive,restorative support, Pharmacy.

BTW, your blog helps many of us looking for deeper answers to our questions. MS Doctors don’t really have time to chat. I take my written assessment of my status into clinic because they understand SOAP notes 📝 

I focus questions carefully to get them all in. Most people had never met a neurologist before. They are, well, different. 

Very helpful to me is the support group ShiftMS. Early on I tried to engage with USA MS society. I wrote a story which they rejected. They are shills for money, not honesty. Shift MS, however are let it all hang out people. A welcoming group. I think that has helped me the most, People sharing, like minded, dealing with MS, like I am, with loved ones who are puzzled, wounded, frightened too. Support groups are better to me online. Then you Pick who you gel with.

Hope this helps.

Monday Musik

 Really Great Music Video

Anne Keating and her masked Band 😷 

Annie Keating Marigold Music Video (Bristol County Tides album out June ... https://t.co/QnemnKuVkU via @YouTube Really Great Tune 😎 pic.twitter.com/c34J1zKEhW

— Mary Gerdt Parler:Alvarita1 (@marygerdt) April 30, 2021

Interview with 45

 Dan Bongino interview of President Donald J Trump

Love Him,

Or Hate Him,

He won’t lose sleep wondering

How You feel,

or if your comfortable,

Because He’s not concerned with touchy-feely stuff.

You don’t want your Surgeon handing you a tissue

When they should be focused on their Dr. duties.

This interview made so much sense, so business like,

Running this big country.

Speech Fluent, Alert, Spontaneous, No subject off limits.

Dan Bongino Fearless Warrior, BS Detector,

Freedom Fighter, Lovin America 🇺🇸 Every Day.

Trump Derangement Syndrome, Oozes into Academic MS Healthcare Blogs.

 It’s one of my favorite Multiple Sclerosis Blogs.

One day she went all political on me.

Idiotic argument. Not easy to grasp.

https://multiple-sclerosis-research.org/2021/04/vaccine-trumpism-for-president/

My Comments: What’s The 45th President of the United States Donald J Trump have to do with Vaccinations?

Your Political jabs are Funny. ? Not enough news about DJT 45, so drugs getting more press so
people won’t take vaccinations?
Our 45th President of the United States initiated Operation Warp Speed.
It enabled Historic Vaccine Development and Saved Countless lives.
https://search.hhs.gov/searchblox/hhs_news/index.html?query=Operation+warp+speed&HHS=Search&cname=hhs_news&page=1&pagesize=10&sort=relevance&sortdir=desc&adsCname=hhs_news&adsDisplay=true&tune=false&default=AND

Today I noticed a few rebuttals to my comments.

It’s not worth commenting on.

President Trump took the vaccine And survived Covid-19.

The myth about Republicans not being vaccinated is a ridiculous notion.